PROMIS-ASL: Inclusion of Deaf Adults in Patient-Reported Outcomes Research
Current patient-reported outcome measures are heavily dependent on English, which present serious language barriers to deaf and hard of hearing (D/HH) patients who use American Sign Language (ASL). The availability of patient-reported outcome measures in ASL and English that is valid for users of accessible technology and services will provide important insights on improving prevention and treatment models that will lead to better personal and public health within the underserved D/HH population. The research plan builds on Dr. Kushalnagar's prior research on communication and quality of life outcomes with the D/HH population. Communication-related fatigue is relevant to health care outcomes.