Center for Deaf Health Equity

The lab's mission is to do research that links accessibility to health outcomes among deaf/hh individuals. The lab's goals are to:

  1. Design and evaluate health research projects
  2. Share results through presentations and publications
  3. Engage in community partnership, training, and education

Our researchers at Deaf Health and Quality of Life are involved in a wide range of biobehavioral and applied research projects. In addition, our faculty, students, and community members - all from a variety of academic backgrounds - contribute to the lab.

Dr. Poorna Kushalnagar, Center Director


HINTS-ASL: Deaf Signers' Experience with Seeking Health Information

ID: 3165
Status: Ongoing
Start date: August 2015
End Date: December 2020

Description

The National Cancer Institute's Health Information National Trends Survey (HINTS) is heavily dependent on English, which presents serious language barriers to Deaf patients who use American Sign Language (ASL). The availability of HINTS and similar surveys in ASL and English that are valid for users of accessible technology and services will provide important insights on understanding the trends in Deaf people's use of the Internet for health-related purposes, therefore improving health communication models that will lead to better personal and public health within this underserved population.

Principal investigators

Priorities addressed

Funding sources

Products

Harris, R. (2017, June 30). The evolution of graduate sign language teacher preparation programs. American Sign Language Teachers Association national biannual conference, Salt Lake City, Utah.

Harris, R., Kushalnagar, P., & Paludneviciene, R. (2017). Open-Ended Cognitive Interview Approach: Rethinking the Gold Standards for Translating Health Measures to ASL. Paper presented at the second Symposium on Signed Language Interpretation and Translation Research. Washington, DC.

Kushalnagar, P, Holcomb, J, & Sadler, G.R. (2019). Genetic testing and eHealth usage among Deaf women. Journal of Genetic Counseling, 00: 1– 7. https://doi.org/10.1002/jgc4.1134

Kushalnagar, P. & Carrizales, S. (2018). Health inequity for shared decision making among deaf males with family history of cancer or of screening-eligible age for PSA tests. Poster presented at the HINTS Data Users Conference, Bethesda, MD.

Kushalnagar, P. & Ryan, C. (2017). Social network sites as accessible health venue for deaf people who use American Sign Language. Paper presentation at the American Public Health Association, Atlanta, GA.

Kushalnagar, P. (2017). HINTS-ASL survey: preliminary findings on deaf people's experience with video relay interpreting and on-site interpreting services in medical settings. Paper presented at the Telecommunications for the Deaf and Hard of Hearing Conference.

Kushalnagar, P. (2018). Health film production as an educational experience for public health students. Presentation at the Undergraduate Public Health and Global Health Education Summit. Arlington, VA.

Kushalnagar, P. (2018). HINTS-ASL: Cultural adaptation and linguistic validation. Paper presented at the HINTS Data Users Conference, Bethesda, MD.

Kushalnagar, P., (2017). Perceived trust and understanding of cancer health information sources among deaf adults who use ASL. Poster presentation at the American Public Health Association, Atlanta, GA.

Kushalnagar, P., Engelman, A., & Sadler, G. (2018). Deaf Patient-Provider Communication and Lung Cancer Screening: Health Information National Trends Survey in American Sign Language (HINTS-ASL). Patient Education and Counseling. DOI:10.1016/j.pec.2018.03.003.

Kushalnagar, P., Harris, R., Paludneviciene, R., & Hoglind, T. (2017). Protocol for Cultural Adaptation and Linguistic Validation of Health Information National Trends Survey in American Sign Language (HINTS-ASL). Journal of Medical Internet Research Protocols. doi:10.2196/jmir.8067

Kushalnagar, P., Hoglind, T., Foreman, D., Lawrence, S., Lena, J., & Miller, J. (2017). Deaf Health Communication Film: Seek, Share, and Connect. American Public Health Association Film Festival, Atlanta, GA.

Kushalnagar, P., Moreland, C., Simons, A., & Holcomb, T. (2018). Perceived communication barrier in family is linked to increased risks for food insecurity among deaf adults who use American Sign Language. Public Health Nutrition. doi: 10.1017/S1368980017002865

Kushalnagar, P., Paludneviciene, R., Bruce, S., Simons, A., & Sadler, G. (2016). HINTS-ASL: Inclusion of Deaf Adults in Cancer Health and Internet Research. Poster presented at the International Cancer Education Conference, Bethesda, MD.

Kushalnagar, P., Ryan, C., Smith, S., & Kushalnagar, R. (2017). Critical Health Literacy in American Deaf College Students. Health Promotion International. doi:10.1093/heapro/dax022.

Kushalnagar, P., Simons, A., & Kushalnagar, R. (2018). Use of Wellness Apps in Deaf American Sign Language Users to Improve Calorie Intake Differs Across Education. Poster presented at the mHealth Technology Showcase, National Institutes of Health, Bethesda, MD.

Kushalnagar,P. and Kushalnagar,R. (2018), Health-Related Information Seeking among Deaf Adults: Findings from the 2017 Health Information National Trends Survey in American Sign Language (HINTS-ASL), in Timothy M. Hale, Wen-Ying Sylvia Chou, Shelia R. Cotten, Aneka Khilnani (ed.) eHealth: Current Evidence, Promises, Perils and Future Directions (Studies in Media and Communications, Volume 15) Emerald Publishing Limited, pp.69 - 91.

Miller, C.A., Biskupiak, A., & Kushalnagar, P. (2019). Deaf LGBTQ Patients' Disclosure of Sexual Orientation and Gender Identity to Health Care Providers. Psychology of Sexual Orientation and Gender Diversity. 62(2), 194-203. doi: 10.1037/sgd0000319

Ryan, C., Kushalnagar, P., & Kushalnagar, R. (2016). Social Network Sites: Comparison of Deaf and Hearing Adult Users of SNSs for Health Related Purposes. Poster presented at the Undergraduate Research Symposium, Rochester, NY.

Simons, Kushalnagar, P. Moreland, C. (2017). Health Disparity and Underdiagnosis of Hypertension in Deaf Signers. Poster presentation at the American Public Health Association, Atlanta, GA.

Spellun, A.H., Moreland, C.J., & Kushalnagar, P. (2019). Young Deaf Adults' Knowledge of Human Papillomavirus and Human Papillomavirus Vaccine's Effectiveness in Preventing Cervical, Anal, Penile, and Oral Cancer. Journal of Pediatric and Adolescent Gynecology. 32(3), 293-299. doi: 10.1016/j.jpag.2018.11.013


PROMIS-ASL: Inclusion of Deaf Adults in Patient-Reported Outcomes Research

ID: 3074
Status: Ongoing
Start date: September 2015
End Date: August 2020

Description

Current patient-reported outcome measures are heavily dependent on English, which present serious language barriers to deaf and hard of hearing (D/HH) patients who use American Sign Language (ASL). The availability of patient-reported outcome measures in ASL and English that is valid for users of accessible technology and services will provide important insights on improving prevention and treatment models that will lead to better personal and public health within the underserved D/HH population. The research plan builds on Dr. Kushalnagar's prior research on communication and quality of life outcomes with the D/HH population. Communication-related fatigue is relevant to health care outcomes.

Principal investigators

Priorities addressed

Funding sources

Products

Holcomb, T. & Kushalnagar, P. (2017). Prevalence of depression and anxiety disorders in a nationwide sample of deaf adults who use ASL. Poster presented at the SRCD preconference meeting, Austin, TX.

Kushalnagar, P. & Bruce, S. (2016, April). Population Health Research with Deaf and Hard of Hearing Adults. Paper presented at the PacRim Disability and Diveristy Conference, Hawaii Convention Center, Hawaii.

Kushalnagar, P. & Bruce, S. (2017). Deaf women's health: How are we doing? Paper presented at the Deaf Women United conference, Miami, FL.

Kushalnagar, P. & Perrodin-Njoku, E. (2017). Black Deaf American's health: How are we doing? Paper presented at the Black Deaf American conference, Baltimore, MD.

Kushalnagar, P., Atcherson, S., Paludneviciene, R., Schlehofer, D., Bruce, S., Gardner, E., McCaw-Maxwell, D., & Cella, D. (2016). PROMIS-ASL: Patient Reported Outcomes Measure for Deaf\/HH Adults. Poster presented at the 23rd International Society for Quality of Life Research, Copenhagen, Denmark.

Kushalnagar, P., Bruce, S., & Holcomb, T. (2017). Topics in Deaf Health Communication and Quality of Life Research Lab. Paper presented at the Deaf & Hard of Hearing SRCD Preconference Workshop, Austin, TX.

Kushalnagar, P., Bruce, S., Sutton, T., & Leigh, I. (2017). Retrospective Parent-Child Communication Difficulties and Risk for Depression in Deaf Adults. Journal of Physical and Developmental Disabilities. DOI 10.1007/s10882-016-9501-5

Kushalnagar, P., Kallen, M., & Cella, D. (2017). PROMIS-ASL Psychometrics. HealthMeasures User Conference, Chicago, IL.

Kushalnagar, P., Paludneviciene, R., Kallen, M., Atcherson, S., & Cella, D. (2020). PROMIS-deaf profile measure: cultural adaptation and psychometric validation in American sign language. Journal of patient-reported outcomes, 4(1), 44. https://doi.org/10.1186/s41687-020-00208-7

Kushalnagar, P., Palundeviciene, R., & Kushalnagar, R. (2019). Video Remote Interpreting Technology in Health Care: Cross-Sectional Study of Deaf Patients' Experiences. JMIR Rehabilitation and Assertive Technologies. 6(1):e13233. doi: 10.2196/13233

Miller, C.A., Biskupiak, A., & Kushalnagar, P. (2019). Deaf LGBTQ Patients' Disclosure of Sexual Orientation and Gender Identity to Health Care Providers. Psychology of Sexual Orientation and Gender Diversity. 62(2), 194-203.